Collateral Damage

I remember the day my husband and I sat in the doctor’s office in Washington DC’s Children’s Hospital and received the news that the concerns we had over Mary’s lack of development were indeed due to brain damage.  Trying to absorb the full implication of the doctor’s words was overwhelming. So, we took in what we could process and started on a lifelong journey to absorb the rest (Brian and I absorbing things at different rates).  When we heard the news, I thought of the shattered dreams I had for [...]

By |2019-07-10T21:23:42-05:00July 10th, 2019|General, Grief, Grieving, perspective, Uncategorized|2 Comments

Flying in the Fog

Sometimes when you parent a child with a disability, it’s like flying an airplane in the fog.  There’s a lot of “angst” in not knowing exactly where you are heading or what your life will look like.  Although we’ve often said this, we didn’t realize until we talked with a pilot, just how similar they are!  We had dinner the other evening with a friend who is also a pilot and we were talking about flying when you can’t see where you are going.  We found what he said to [...]

By |2018-07-06T06:04:26-05:00July 3rd, 2018|Grief, Grieving|6 Comments

Good Grief!

When you are parenting a child with special needs, there often is a sense of loss ... a loss of dreams, expectations and your own independence. And with loss, comes grieving.  Unlike some other circumstances where there is grieving, when there is a child with special needs, grief often recycles and rears its ugly head at life’s milestones. When our daughter turned 16 there weren’t jokes about her getting her driver’s license or dating.  Milestones often can "remind” us of your loss and trigger all those feelings that come with [...]

By |2018-06-28T06:21:48-05:00June 28th, 2018|Grieving|1 Comment

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