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Collateral Damage

I remember the day my husband and I sat in the doctor’s office in Washington DC’s Children’s Hospital and received the news that the concerns we had over Mary’s lack of development were indeed due to brain damage.  Trying to absorb the full implication of the doctor’s words was overwhelming. So, we took in what we could process and started on a lifelong journey to absorb the rest (Brian and I absorbing things at different rates).  When we heard the news, I thought of the shattered dreams I had for [...]

By |2019-07-10T21:23:42-05:00July 10th, 2019|General, Grief, Grieving, perspective, Uncategorized|2 Comments
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“Lord, I can’t do this!”

“Lord, I can’t do this!”.  I don’t know how many times I have stood in my kitchen (or bedroom, or wherever) and have uttered these words.  Perhaps it was when Mary had a meltdown in public or I had to clean up a mess she had made or when someone said something hurtful or dismissive to her. I’m sure that sometimes, it was just an emotional reaction to something I didn’t want to do.  But there were times when it was a literal statement, “This is beyond me, Lord. I [...]

By |2019-05-10T06:59:04-05:00May 10th, 2019|General, Grief, Harder, Uncategorized|Comments Off on “Lord, I can’t do this!”
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Flying in the Fog

Sometimes when you parent a child with a disability, it’s like flying an airplane in the fog.  There’s a lot of “angst” in not knowing exactly where you are heading or what your life will look like.  Although we’ve often said this, we didn’t realize until we talked with a pilot, just how similar they are!  We had dinner the other evening with a friend who is also a pilot and we were talking about flying when you can’t see where you are going.  We found what he said to [...]

By |2018-07-06T06:04:26-05:00July 3rd, 2018|Grief, Grieving|6 Comments
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